http://www.scdam.org/welcome-to-the-new-scdam-website SCDAM: Sickle Cell Advocacy: Let's Do this Tue, 02 Mar 2010 13:53:24 +0000 hourly 1 http://wordpress.org/?v=3.0.1 http://www.scdam.org/welcome-to-the-new-scdam-website/comment-page-1#comment-229 Sherry Tue, 02 Mar 2010 13:53:24 +0000 http://www.scdam.org/?p=28#comment-229 Hello, I am a proud grandmother of 8 and have two granddaughters who have struggled with this disease. One granddaughter had a transplant a few years ago and is now disease free but still has the trait; the other with prayers will go through the bone marrow transplant sometime 2011. In the past years Sharon (other grandmother) and Norma (great grandmother), and I have been advocates (Grandma Advocates for Sickle Cell Disease) in helping to raise money and awarness to help my daughter and her husband raise money to help with medical expenses. Both have been on continued battle with insurance companies as well. Most times, we grandmothers have been advocating and funding raising in Des Moines, Iowa, in which I am orginally from. In the past I have contacted the Sickle Cell Disease Association in Illinois for information, brochures, etc. to handout. I would like to know more about the Association in Minnesota and to know if you also provide information for such events? At present I can be contacted via email at Sherry.Brewer@minneapolis.edu. Thank you for taking the time and reading this message. Hello,
I am a proud grandmother of 8 and have two granddaughters who have struggled with this disease. One granddaughter had a transplant a few years ago and is now disease free but still has the trait; the other with prayers will go through the bone marrow transplant sometime 2011. In the past years Sharon (other grandmother) and Norma (great grandmother), and I have been advocates (Grandma Advocates for Sickle Cell Disease) in helping to raise money and awarness to help my daughter and her husband raise money to help with medical expenses. Both have been on continued battle with insurance companies as well. Most times, we grandmothers have been advocating and funding raising in Des Moines, Iowa, in which I am orginally from. In the past I have contacted the Sickle Cell Disease Association in Illinois for information, brochures, etc. to handout. I would like to know more about the Association in Minnesota and to know if you also provide information for such events? At present I can be contacted via email at Sherry.Brewer@minneapolis.edu.
Thank you for taking the time and reading this message.

]]> http://www.scdam.org/welcome-to-the-new-scdam-website/comment-page-1#comment-197 Margit Heald Thu, 26 Nov 2009 00:16:04 +0000 http://www.scdam.org/?p=28#comment-197 Hello! My name is Margit Heald. My brothers name is Arty Heald. Arty was recently diagnoised with a rare form of kidney cancer that is associated with SCD. My nephew also carries the SC trait. My brothers kidney has since been removed however, the cancer had already spread to his lungs. He is currently receiving chemo to fight the cancer and luckly for us the chemo has helped. We are all new to SCD and know very little about it. I am looking for resources to help my brother and our family through this tough time. I have included my brother's webpage to this reply. Any help would be great. I was also wondering if SCDAM does any 5k walks or any other awarness fundraisers? Thanks in advance for any information. Margit Heald Hello! My name is Margit Heald. My brothers name is Arty Heald. Arty was recently diagnoised with a rare form of kidney cancer that is associated with SCD. My nephew also carries the SC trait. My brothers kidney has since been removed however, the cancer had already spread to his lungs. He is currently receiving chemo to fight the cancer and luckly for us the chemo has helped. We are all new to SCD and know very little about it. I am looking for resources to help my brother and our family through this tough time. I have included my brother’s webpage to this reply. Any help would be great. I was also wondering if SCDAM does any 5k walks or any other awarness fundraisers?
Thanks in advance for any information.
Margit Heald

]]> http://www.scdam.org/welcome-to-the-new-scdam-website/comment-page-1#comment-10 PAMELA Mon, 11 May 2009 18:46:33 +0000 http://www.scdam.org/?p=28#comment-10 I AM THE PRESIDENT OF MY SICKLE CELL CHAPTER. WOULD LOVE TO TALK TO SOMONE 239-810-7918 I AM THE PRESIDENT OF MY SICKLE CELL CHAPTER. WOULD LOVE TO TALK TO SOMONE 239-810-7918

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