SICKLE CELL CHALLENGES
Although research and sickle cell treatments have progressed in the last several decades, there are still many unfortunate challenges sickle cell patients face today. (See article on sickle cell challenges)
~Ijeoma Okechukwu~
SCDAM: Sickle Cell Advocacy: Let's Do this
5 comments
I know from my experince alone that a lot of times just to motivate yourself to go through your day is a hardship. The situation that we are in, may weigh heavy on us emotionally & mentally and u can start feeling sorry for yourself. Because we think that we are the only ones who bare this burden you can feel alone with all you have to deal with. We can at times feel overwhelmed with going in and out of the hospital,in and out of the er(emergeicy room) trying to make it to your clinic appointments trying to stay healthy. While all this is going on you have to put up with nasty comments flung your way, Dr.s & nurses challenging you on the the best course of action to take to deal with your health care only if they would listen to us more things would run a lot smoother & put there egos to the side. We are survivors & knowone knows our body better than us. The medical community can learn a great deal from us, if they give us a chance. So on those days we wake up & feel not so motivated, just remember it can always be worse & going in and out of the er & in and out of your clinic appointments, know that it is to our benefit. To my Sickle Cell Anemia Disease family know that u r not alone in this war I’m riding shotgun with you. Shotgun means front seat for those who didn’t know what the term means.
Hallo Daryll Wilcher Jr
I am writting to you from Kampala Uganda. I started a project on Sickle Cell. Through the organisation we sensitise local communities on disability, raise awareness and advocate for the voiceless. I am requesting you to support us in any way possible. For more details dont hesitate to contact me on the above address
The passion to set up Sickle Cell Awareness Network was born out of the loss of my two children to the disease who died in my village in Jaiama Nimikor in the Kono District of Sierra Leone. Their death was avoidable because it was merely due to lack of information about the disease; we did not know we were carriers of the Sickle cell trait and had no understanding of Sickle Cell Anaemia or how it is contacted.
Having lived in England with my daughter who also lives with
the disease, I came to realize that there are a variety of facilities available for people living with the disease. This gave me the inspiration and motivation to set up something that will benefit other people suffering from the disease in the Kono district in Sierra Leone. The aim of SCANN is to give people hope who are living with the disease that they have a chance to live life to the full. The project will address the misunderstanding that surrounds sickle cell disease.
Our passion is to make sure that sickle cell sufferers do not live in a hopeless situation when they could receive help by the intervention of organizations such as SCCAN.
Sickle Cell Carers Awareness Network (SCCAN) aims to create awareness among the people of Sierra Leonean in order to foster extended lives and improve the quality of the lives of people living with Sickle Cell Anaemia in the country.
Our vision is to reach out to SCA sufferers in Sierra Leone with a focus on certain districts, initially, as entry points for a national sickle cell programme.
CHANGE THE COVER OF YOUR WEBSITE………NASTY ASS TEETH
Great 2 have good people and doctors supporting a great cause!
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