OMG, How can I get them to do this survey here in Orlando??? I am a 33 yr old SCD patient & I know for a fact that there are’nt enough nurses, docters or staff for that matter who have interacted with us to have anything besides the stereotypical preconceptions of SCD patients. I have dealt with so many non-chalant, it does’nt mater one way or another to them, just really insensitive healthcare professionals. Don’t get me wrong, I know that I can be bitchey :EVIL: @ times but what else do you expect from someone that iz in a TREMENDOUS amout of pain. There is’nt a scale long enough to measure the excrutiating pain that we’re in!!! The staff takes things too too personal & start to lash out at the patient in return… I JUST HATE THE FACT THAT WE’RE TREATED LIKE DRUGGIES OR JUNKIES BEFORE THEY EVEN CHECK OUR LABS…PLEASE STOP DOING THAT! Oh, and when you realize that my crisis iz certain…just have the balls to apologize!!! I apologize all of the time , if/when I take my frustrations out on staff members…
You are speaking to the choir girl. We go through so much when we are having a crisis. Usually it go’s down like this, once we do make it to the er, we have been in pain 4 several days at our home because we don’t want to go to the er(emergency room) in the first place because of 2 reasons. One we go to the hsptl(hospital) so much that we are tired of going & number 2 is, we know once we get to the er we r going to go through so much bs & having to convince nurses & doctors that we r genuienly having a crisis. These are the same people who have been taking care of us for most of our lives, yet they treat us as if we just came in off the street. Then they have u wait in the er lobby forever & u wait & wait & wait in exscrutiating pain & the only thing u r thinking about is when r they going to call your name & let u back in the gates of heaven, because thats how u feel, youre one step closer to getting out of hell. U finally make it to the back &.they put u in a room & the nurse leaves out & before they leave they say ” the doctor will be in shortly” which is another lie. When u get to the back u r still in pain & they dont tend to u,they act like they forgot abput u & the whole time u see and hear all this activity going on but knowone is paying u any attention, and now the pain is so bad that u want to rip youre hair out. I have expierienced the staff paying more attention to the white patients, as if they r more important than u, and its not the white patients fault, but the attitude of the staff which allows this behavior to continue & it stresses u out. U r already dealing with a stressfull situation, its like your plate is already full & now the food is spilling over because theres no more room on the plate, & thats the easiest way i can explain it, so people who dont know what we go through can relate to our stressfull situation. Stress alone can trigger a crisis so u would think that they would try to make it easier on the patient. After waiting for so long, the doctor finally stroles in & ask u whats the problem this time & u tell the doc how u feel and he or she gives u this look as if u r boring them like they have something better to do.Time passes by & the nurse comes in with your meds & administer them to u & the meds slowly start to take effect & your body starts to feel normal again, & u are praying to god and thank him 4 giving u the strength to fight off another battle in this war with S.C.A.D. So u docs & nurses in the future, make sure u treart all your
Sickle cell patients with some respect & dignity, afterall u made a decision to get in this profession, but we never had that luxury.
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OMG, How can I get them to do this survey here in Orlando??? I am a 33 yr old SCD patient & I know for a fact that there are’nt enough nurses, docters or staff for that matter who have interacted with us to have anything besides the stereotypical preconceptions of SCD patients. I have dealt with so many non-chalant, it does’nt mater one way or another to them, just really insensitive healthcare professionals. Don’t get me wrong, I know that I can be bitchey :EVIL: @ times but what else do you expect from someone that iz in a TREMENDOUS amout of pain. There is’nt a scale long enough to measure the excrutiating pain that we’re in!!! The staff takes things too too personal & start to lash out at the patient in return… I JUST HATE THE FACT THAT WE’RE TREATED LIKE DRUGGIES OR JUNKIES BEFORE THEY EVEN CHECK OUR LABS…PLEASE STOP DOING THAT! Oh, and when you realize that my crisis iz certain…just have the balls to apologize!!! I apologize all of the time , if/when I take my frustrations out on staff members…
You are speaking to the choir girl. We go through so much when we are having a crisis. Usually it go’s down like this, once we do make it to the er, we have been in pain 4 several days at our home because we don’t want to go to the er(emergency room) in the first place because of 2 reasons. One we go to the hsptl(hospital) so much that we are tired of going & number 2 is, we know once we get to the er we r going to go through so much bs & having to convince nurses & doctors that we r genuienly having a crisis. These are the same people who have been taking care of us for most of our lives, yet they treat us as if we just came in off the street. Then they have u wait in the er lobby forever & u wait & wait & wait in exscrutiating pain & the only thing u r thinking about is when r they going to call your name & let u back in the gates of heaven, because thats how u feel, youre one step closer to getting out of hell. U finally make it to the back &.they put u in a room & the nurse leaves out & before they leave they say ” the doctor will be in shortly” which is another lie. When u get to the back u r still in pain & they dont tend to u,they act like they forgot abput u & the whole time u see and hear all this activity going on but knowone is paying u any attention, and now the pain is so bad that u want to rip youre hair out. I have expierienced the staff paying more attention to the white patients, as if they r more important than u, and its not the white patients fault, but the attitude of the staff which allows this behavior to continue & it stresses u out. U r already dealing with a stressfull situation, its like your plate is already full & now the food is spilling over because theres no more room on the plate, & thats the easiest way i can explain it, so people who dont know what we go through can relate to our stressfull situation. Stress alone can trigger a crisis so u would think that they would try to make it easier on the patient. After waiting for so long, the doctor finally stroles in & ask u whats the problem this time & u tell the doc how u feel and he or she gives u this look as if u r boring them like they have something better to do.Time passes by & the nurse comes in with your meds & administer them to u & the meds slowly start to take effect & your body starts to feel normal again, & u are praying to god and thank him 4 giving u the strength to fight off another battle in this war with S.C.A.D. So u docs & nurses in the future, make sure u treart all your
Sickle cell patients with some respect & dignity, afterall u made a decision to get in this profession, but we never had that luxury.
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