SCDAM: Sickle Cell Advocacy: Let's Do this
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Race and Sickle Cell Disease

1 comment

1 BrizeeGyrl76 { 12.05.09 at 5:13 pm }

OMG, How can I get them to do this survey here in Orlando??? I am a 33 yr old SCD patient & I know for a fact that there are’nt enough nurses, docters or staff for that matter who have interacted with us to have anything besides the stereotypical preconceptions of SCD patients. I have dealt with so many non-chalant, it does’nt mater one way or another to them, just really insensitive healthcare professionals. Don’t get me wrong, I know that I can be bitchey :EVIL: @ times but what else do you expect from someone that iz in a TREMENDOUS amout of pain. There is’nt a scale long enough to measure the excrutiating pain that we’re in!!! The staff takes things too too personal & start to lash out at the patient in return… I JUST HATE THE FACT THAT WE’RE TREATED LIKE DRUGGIES OR JUNKIES BEFORE THEY EVEN CHECK OUR LABS…PLEASE STOP DOING THAT! Oh, and when you realize that my crisis iz certain…just have the balls to apologize!!! I apologize all of the time , if/when I take my frustrations out on staff members…

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